The next several days were so busy for us. There was so much to learn. We both stayed with him the first night in his new room. We then decided that I would stay at night with him and Jamie would stay with Taylor at the Ronald McDonald House. They could stay until 9:00 and Jamie would come back early the next morning. His parents and my parents took turns staying with us. This really helped us alot. They would watch Taylor each morning until she could come to the hospital at 9:00. They would stay with Jace so we could go downstairs to the food court and eat or occasionally leave the hospital for a good meal. They even kept our laundry done. We are so blessed to have such wonderful parents. Taylor stayed with us most of our stay except for a few days. We would get her school work and she would work on it at the hospital. This helped keep her occupied too.
Jace continued to recover well. The following is his weight on these days:
Wed. Feb 11th - 6 lbs 7.6 ozs
Thurs. Feb 12th - 6 lbs 7.4 ozs
Fri. Feb 13th - 6 lbs 13 ozs
At this point they decided to do the swallow study. They gave him some medicine and then he would drink from a bottle. They would watch on a screen to see where his milk was going when he swallowed. They discovered from this study that some of the milk was going into his lungs. They felt that it would be in Jace's best interest to insert a feeding tube in his stomach. Feeding is one of the biggest obstacles that HLHS babies have to overcome. It is very important for them to be able to gain weight before the second surgery. The doctors do everything they can to help the babies overcome this hurdle.
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