Day 5 - Sunday

Jace felt so good yesterday that I think he may have over done it a little.  He didn't rest well at all.  He would sleep for a few minutes at a time and then sit up in bed.  This went on from midnight until about 6:00.  I told him he looked like a jack-in-a-box.  The nurse was hoping that the blood they drew lastnight would work for labs.  They didn't, so Jace had to be stuck for more blood this morning.  I think he may be getting use to it now because he handled it much better.  We had a male care partner in the room at the time and I told him I thought Jace was trying to act like a big boy in front of him.

During rounds they said his chest x-ray looked better than yesterday.  Each day it seems to be improving.  They have stopped the tordal and scheduled tylenol every 6 hours.  He can have oxycodone as needed.  As far as the feeding goes, we are going to try a bolus feed at 12:00 with a smaller amount than normal and extend it over 2 hours.    One of Jace's drain tubes is ready to come out, but the other one is not.  They decided to wait until both of them could come out at the same time.  The doctor thinks they might be ready to come out by tomorrow.  Right now it is just a waiting game.  They have had so much trouble with Jace's IVs that they discussed putting in a PICC line.  This is more of an ordeal than just getting a new IV.  They have an actual team who does them and it has to be done in a sterile environment.  The good thing would be that they would not have to stick him anymore for the labs they need. 

The afternoon was pretty quiet and went smoothly.  Since Jace didn't sleep much lastnight, he napped on and off most of the afternoon.  When he was awake, he played some, but you could tell he was tired.  Jamie's theory at home is when Jace naps, then he naps.  So he spent most of his Father's Day afternoon napping.  I guess that was a pretty good present.  For Jace's 1st surgery, we were here on Father's Day and now for this one too.  So two out of the last three years, Jamie has spent Father's Day here.  Hopefully this will be the last time he will ever have to do that. 

3 generations

Jace's oxygen sats kept dropping at times down in the high 70s so they put the oxygen back on him.  They want them to be atleast 85.  The plan is to leave him on it for awhile and then start to wean him off.  He is on a very low amount.  They took him off oxygen the day after surgery.  It may have been a little too soon for him.  They don't seem too concerned with putting it back on him.  I think it is pretty common for kids to need oxygen for several days after the surgery.

Jace slept better tonight than he did lastnight.  I think he was so tired.  He only woke up a couple of times outside of when a nurse came in the room.  They are in alot during the night, but he was able to sleep an hour or two at a time.  Hopefully it won't be long until we are all at home and sleeping in our own beds.